Then the nasty side of Britain became evident. His remarkable recovery was questioned; the 'nasties' also questioned just how ill he really was. How hurtful that must have been.
Sadly Stephen was hospitalised again but his condition did not bode well. He was now unable to communicate.
In a post announcing Stephen's death, Jane Sutton said he was a "courageous, selfless, inspirational son" and who could disagree with that? He became too sick to post updates via his Facebook page and his loved ones asked for privacy at this time as they wanted to share what time he had left as a family.
During his fund raising time Stephen raised more than £3.2 million for charity. A great legacy, especially for one so young.
He continued to laugh and do amazing things. His life was brief but he accomplished more than some people will do if they live to be 100.
Stephen previously beat the odds and his supporters hoped he could do so again but it was not to be. As his condition worsened a family statement on Facebook read:
"Unfortunately in the last 24 hours Stephen's condition has deteriorated to where he can no longer communicate through this page himself. "Unfortunately the breathlessness which had him re-admitted to hospital is due to the regrowth of tumours which are blocking his airways, and not just due to infection as we had all been hoping. "He is currently comfortable and stable, and we will let you know of any further developments. "Right now however, as a family, we wish for a certain amount of privacy for us to spend what time he has remaining with him. "We appreciate everyone's concern, and for all the love and goodwill sent his way, and indeed ours too, we thank you deeply x."
Rest in peace Stephen
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